Been with my boyfriend for about 3 years now, living together for the past year and a half. When we first started dating he didn't mention having epilepsy until maybe 4 months in
The seizures are really intense – full grand mal episodes where he's on the ground for a couple minutes. What scares me most is that recently his last few seizures, he stops breathing completely and his lips go blue. I keep thinking each time might be the one where he doesn't start breathing again
The recovery period is brutal. For like 90 minutes after he's completely out of it, doesn't know where he is or what happened. He makes up these weird stories about how he got somewhere. During this time I basically have to watch him like a toddler – he's drooling and spitting blood everywhere, throwing up randomly, trying to stand up when he can't even balance properly. I'm constantly making sure he doesn't fall and hurt himself worse
After that initial recovery he sleeps for anywhere from 6 to 14 hours no matter if it's morning or night. Then he's out of commission for at least a day, sometimes longer because every muscle in his body aches
Here's my issue – whenever one happens I have to drop everything immediately. If he's standing I need to catch his head so he doesn't crack it open. But he gets mad at me for "controlling his sleep schedule" when I try to get him to go to bed at reasonable times or not stay up all night gaming
Am I being unreasonable here? The lack of sleep definitely makes the seizures more frequent but he acts like I'm being a controlling boyfriend when I suggest maybe getting some rest