My 5 YO has very complex autism & pathological demand avoidance (not necessarily in demands but rooted in autonomy, very extremely)
Life is extremely difficult & things become worse as he gets older, I have tried to fight the battles for the EHCP, school support & so on & have done everything correctly, but feel I am getting nowhere.
My child is really troubled honestly, violent, unkind and extremely anxious.
I have little capacity for work mentally, with my efforts going there rather than on my child. He is very complicated and layered & it requires time, energy, extreme patience to even start to deal with him.
He keeps refusing school, im getting many calls from the school, he is suspected dyslexic & work are getting pissed off with me, the pressure to not let them down, means I am not 100% being there for my child, as in, having to force him to school when he’s extremely anxious, because i HAVE to be at work.
I worry about his mental health as he gets older, if i cannot put 100% into parenting him in a way that reflects his additional needs, and we do not have any support.
I dont want him to grow up to be a dangerous, or anxious, depressed adult.
Right now, it feels peak time to get learning in place catered to his regulation, but I need to be on the ball ALL of the time, calm and ready to fully understand him & create a lifestyle where our family can be happy.
I am looking for anyone’s experience in doing this, its sad for me, but hes my child & he needs me